
When Calysta Rose was born 9 years ago, it was Lavina Jacinta’s first ever experience with congenital heart disease (CHD). Calysta was born with Truncus Arteriosus – a rare heart defect where the aorta and pulmonary artery (two of the main blood vessels of the heart) fail to separate completely during development and remain connected.…

Like many adults with congenital heart disease, Lisa Shubagaran only found out about her heart defect when she was in her 30s. For Lisa, a miscarriage was what led to a diagnosis of a congenital heart disease. In 2015, Lisa felt unwell and became so bloated she couldn’t even walk two steps, lie flat or…